People living with TDT pictured may or may not have received CASGEVY.
Ready to find out if transfusion independence is possible with CASGEVY?
Ready to find out if you can achieve transfusion independence with CASGEVY?
The first step is sitting down with your healthcare provider and your support network to discuss CASGEVY. We've put together some questions to think through and discuss with your loved ones and healthcare team.
To get ideas on some important questions to consider, select a topic below.
Healthcare Provider Discussion
Questions for your healthcare provider
- How does gene therapy work?
- Is gene therapy a good treatment option for beta thalassemia?
- How do I know if CASGEVY is right for me?
- How does CASGEVY help people living with beta thalassemia live without regular blood transfusions?
- Will CASGEVY fix the organ damage I already have?
- How safe is CASGEVY?
- How does CASGEVY help the body make working red blood cells?
- Why don’t I need a donor with CASGEVY?
- What are the steps to receiving CASGEVY? How long does it take?
- Will treatment be covered by insurance? What will I need to pay?
- What else should I consider when deciding on CASGEVY?
Self-Reflections
Questions to ask yourself before starting CASGEVY
- How could treating with CASGEVY change my life with transfusion-dependent beta thalassemia?
- How will I manage my personal responsibilities (home, work, school, family) during the treatment process?
- Whom can I lean on for support throughout my journey?
- The chemotherapy given before CASGEVY can affect my ability to have children. Is fertility preservation something I want to consider?
- Am I prepared to start the treatment journey with CASGEVY and everything that is involved?
- How will CASGEVY affect my identity as someone living with transfusion-dependent beta thalassemia?
Caregiver Considerations
Questions for caregivers supporting a loved one
- What information do I need to help my loved one decide if CASGEVY is right for them?
- What are the different ways I will need to support my loved one on their treatment journey?
- How will my responsibilities as a caregiver change once my loved one starts CASGEVY? Do I need extra support?
- How can I make sure I am there for my loved one throughout their journey? What plans should I make so that I can support them?
- What resources or support groups are available to me? How do I also care for myself during this time?
- How can I help my loved one think through future considerations, like the possible impact on fertility?
